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Hope for people with rare diseases

Little girl using inhaler and showing OK.
© Liderina, shutterstock

EUROPEAN COMMISSION, DIRECTORATE-GENERAL FOR HEALTH AND FOOD SAFETY

September 2018

Question

How do you make sure a conference on rare diseases caters for doctors and patients alike?

Answer

By tailoring the event logistics to the specific needs of the 450 participants.

30 million Europeans suffer from rare or complex diseases. These patients can’t always count on the medical teams in their own country for help as many Doctors will never see a case of their condition in their career. European Reference Networks (ERN) offer the hope of a better quality of life for these people. Patients can rely on the expertise of specialists in 25 countries for diagnosis and treatment review using virtual platforms and long-term partnerships.

Tipik’s events team has played its part in helping to improve lives by bringing doctors, hospital managers and patient representatives together in person for the ERN conferences. Our team managed the 2015 and 2017 editions in Lisbon and Vilnius and is currently working on the 2018 conference.

We deal with travel, accommodation, catering, VIP services, promotional goodies, live-streaming and interpretation. Our hostesses and event managers are there on the day in force to make sure everything runs smoothly.

This is no ordinary event. The 450 participants include specialist doctors and surgeons with demanding schedules. This makes organising travel complex. Some patient representatives have mobility issues and specific dietary needs so sites need to be accessible, flights and transfers wheelchair-friendly where necessary and catering very carefully managed. Everyone must be made to feel welcome and valued. Our experienced team, with their attention to detail and long-term planning, makes sure they do.